Nothing About Us Without Us

Tools for and Examples of Community-Led Research

A group of youth holding paddles and signs beside a river

Communities across the United States are more and more frequently impacted by climate change and increasingly face problems like property damage and health and safety issues as a result of flooding and extreme heat. Inadequate wastewater treatment and lack of access to safe and affordable drinking water in many communities compound these threats.

Community-based organizations in our network are working to address these impacts on residents, advocating for solutions to make their communities safer, healthier, and more resilient. These organizations have repeatedly emphasized that to equitably and successfully carry out climate resilience solutions, it’s imperative to directly engage with community members to deeply understand how the problems directly impact them. Likewise, to formulate solutions that are equitable and truly work—and to get utilities and city officials to prioritize equitable investments in under-invested areas—direct engagement with members of the community to identify solutions is essential.

Tools for Equitable Climate Resilience

Side-by-side cover images of two reports with titles, logos, and photos of groups of people.
Side-by-side cover images of two reports with titles, logos, and photos of groups of people.

With support from the Kresge Foundation in 2019, River Network set out to explore climate resiliency strategies and equitable engagement of communities in climate resilience work. In addition to consulting with community organizations, the results of this work include a two-part toolkit highlighting both  Fostering Leadership Development  and  Fostering Community-Led Research and Knowledge  as essential tools for addressing the diverse risks posed by climate change.

The tools are interrelated. Community-led research helps to identify community leaders; and community leaders are necessary to move research into action.

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To date, River Network has partnered with 14 locations to support CLR work and 5 locations to promote Leadership Development.

Community-Led Research

Here we focus on Fostering Community-Led Research and Knowledge, which provides an approach to more holistically understanding the nature of problems impacting a community—from the perspective of the people who directly experience it—before solutions are identified and implemented.

We developed this toolkit for network members who asked for step-by-step guidance and lessons learned on how to effectively engage with community members to understand climate impacts and to develop climate resilience strategies.

Cover image of River Network Toolkit - blue background with title text and photos of groups of people

Defining Community-Led Research

In the toolkit, River Network and partners define Community-Led Research (CLR) as:

"A process through which community members come together to gather and synthesize their collective wisdom and knowledge in order to more fully understand how a problem—or set of problems—impact their community, to identify solutions that will work best for their specific community, and to build a case for support."

Flow chart of CLR Stages of Community Engagement including: (1) decision to do CLR, (2) Research Design & Choose Methods, (3) Implementation, (4) Analysis, and (5) Data to Action

CLR works best when it is approached as an inclusive, community-driven and -centered process where all segments of the community's residents are represented and engaged in the process, with special attention to lifting up voices that have historically been left out of community decisions. This means, residents have leadership roles in:

  • the decision to do CLR in the first place
  • the design of the CLR project
  • the implementation of the CLR project
  • the analysis of the community-generated data
  • the decision(s) on how the community-generated data will be used.
Flow Chart of CLR benefits including vital data for problem solving, equitable solutions, community strength & leadership-building, relationship & trust-building, and bolstered advocacy

CLR Methods

Three key methods are outlined in the River Network toolkit: (1)  Remote Crowdsourcing , (2)  Community Mapping Exercises , and (3)  Person-to-Person Surveying .

A group of 5 people, three sitting and two standing, around a table working together on documents and a tablet

Remote Crowdsourcing

Remote  crowdsourced data collection  is a participatory method of building a dataset with the help of a large group of people. In this context, a large number of people are recruited to share information remotely, usually via the internet and/or smartphone apps, to collectively build a dataset which demonstrates a community problem that needs to be addressed.

Remote crowdsourcing has the potential to collect large amounts of data from a large number of contributors in dispersed areas. At the same time, there is limited direct interaction with residents in the community.

Community Mapping Exercises

Community mapping is a participatory mapmaking process where a group of people who have a shared interest collaboratively develop a map, based on their knowledge of an issue. Participatory maps can illustrate more than just geographic information; they can also illustrate important social, cultural, and historical knowledge. Participatory maps often represent a socially or culturally distinct understanding of a particular place such as a neighborhood, and include information often excluded from mainstream maps, which usually represent the views of the dominant sectors of society.

Person-to-Person Surveying

Person-to-person surveying is a process to collect data from the community using a standardized set of questions, in which the surveyor meets community members where they arewhether by knocking on the doors of residents' homes or approaching community members near common gathering places in the neighborhood.

Person-to-person surveying requires identifying the specific data you want to collect, the amount of data you need, determining who to collect data from, developing a set of questions that unearth the needed data, and training and supporting surveyors to undertake the process consistently. The process gives you an opportunity to get to know more residents in the community and build relationships.

Case Studies

Using the CLR toolkit and associated resources as a guide, River Network—with financial support from the Kresge and the Patagonia Foundations—has provided 14 communities with technical support and funding to design and implement CLR projects related to climate resilience and water equity. Here, we highlight four recent projects from Avondale, PA; Baltimore, MD; Houston, TX; and Ponce, PR. Click on the place marker on the map or the logos to the left to find more information about each location.

Avondale, PA

Avondale, PA. Click to expand.

White Clay Watershed Association

Baltimore, MD

Baltimore, MD. Click to expand.

Blue Water Baltimore

Houston, TX

Houston, TX. Click to expand.

West Street Recovery

Ponce, Puerto Rico

Ponce, Puerto Rico . Click to expand.

Un Nuevo Amanecer

Avondale, PA

Mission: To promote and support the preservation, protection, restoration, and enhancement of natural and cultural resources of the White Clay Creek Watershed in Pennsylvania and Delaware, in addition to encouraging a balance of recreational enjoyment.

Location: Avondale Borough, PA Project:  Developing an Equitable Community Greening Plan for Avondale Borough Using Community-Led Research  Partners:  The Garage Community and Youth Center ,  Mighty Writers El Futuro ,  Casa Guanajuato , Avondale Borough, National Park Service CLR Method: Person-to-Person Surveying Contact:  Shane Morgan , Program Director

Baltimore, MD

Mission: Clean water. Strong communities. Blue Water Baltimore’s mission is to restore the quality of Baltimore’s rivers, streams and Harbor to foster a healthy environment, a strong economy and thriving communities.

Location: Cherry Hill and Belair-Edison Neighborhoods Project:  Lifting the Veil on Sewage: Connecting Baltimore Communities with Resources and Relief  Partners:    Cherry Hill Development Corporation ,  Belair-Edison Community Association , University of Maryland’s  Stormwater Infrastructure Resilience and Justice (SIRJ) Lab  and  Water Quality, Outreach, and Wellness (WOW) Lab  CLR Method: Person-to-Person Surveying and Bacterial Sampling Contact:  Taylor Smith-Hams , Advocacy & Outreach Senior Manager

Houston, TX

Mission: West Street Recovery was formed during Hurricane Harvey by a group of people who came together to perform rescues, distribute food and water, and meet the needs of flood survivors. Since then, WSR has grown into a horizontally– structured and worker–directed disaster recovery nonprofıt, which uses Hurricane Harvey home repair and community engagement to build more broadly towards social justice and an equitable recovery.

Location: Northeast Houston Project:  Community Evaluation of Flood Impact in Northeast Houston  Partners:  Northeast Action Collective  CLR Method: Person-to-Person Surveying and Community Mapping Contacts:  Becky Selle , West Street Recovery;  Doris Brown , Northeast Action Collective

Ponce, Puerto Rico

Mission: Un Nuevo Amanecer is a community-based, nonprofit organization with a mission to help the residents of Playa de Ponce.

Location: Ponce, Puerto Rico Project: Building Socio-Ecological Resilience: Community Inventory of Unused properties and Flood-Prone Coastal Areas in Playa del Ponce Partners:  Centro para la Reconstruccion del Habitat, Inc.  CLR Method: Community Mapping Contact:  David Southgate , Advisor to Un Nuevo Amanecer, Inc.

White Clay Watershed Association

Location: Avondale Borough, PA Project: Developing an Equitable Community Greening Plan for Avondale Borough Using Community-Led Research Partners:  The Garage Community and Youth Center ,  Mighty Writers El Futuro ,  Casa Guanajuato , Avondale Borough, National Park Service CLR Method: Person-to-Person Surveying and Community Mapping Contact:  Shane Morgan , Program Director

An environmental justice community with a large Hispanic population, Avondale Borough experiences frequent and intense flooding at the confluence of the east and west forks of White Clay Creek, which is a federally designated Wild and Scenic River. As a result, a significant number of borough residents have experienced evacuations from their homes on multiple occasions in recent years, sometimes being displaced for weeks and months at a time. As part of an effort to develop a community green infrastructure plan to mitigate flooding, the  White Clay Watershed Association  (WCWA) employed CLR methods to better understand flooding impacts in the borough and other related needs and priorities of the community.

Three people with clipboards stand on a corner of rural residential street intersection

WCWA worked with a four-person, advisory team of local leaders and residents to guide the project, develop a community outreach plan, design a community survey, and work with young borough residents to administer the survey door-to-door, at community events, and online. Survey participants received Walmart gift cards for their participation.

Of the 104 survey respondents, 82% indicated that they had experienced flooding at least one to three times in the past, and a significant number acknowledged experiencing negative impacts to their mental health, household finances, and property as a result. Further, the data showed some important differences in how Spanish- and English-speaking residents are impacted by flooding and which flood reduction strategies they prefer.

Graphs display survey respondents' impacts of flooding and preferred flood mitigation strategies by primary language

Analysis of the data shows the survey respondents' impacts of flooding and preferrred flood reduction/mitigation strategies.

The responses to the survey are guiding the green infrastructure plan, as well as informing local advocacy on a number of related issues like safe pedestrian corridors, improved emergency services, and additional affordable housing options outside of the flood zone.

Red clip board with papers and a map on a table top

Blue Water Baltimore

Location: Cherry Hill and Belair-Edison Neighborhoods Project: Lifting the Veil on Sewage: Connecting Baltimore Communities with Resources and Relief Partners:  Cherry Hill Development Corporation ,  Belair-Edison Community Association , University of Maryland’s  Stormwater Infrastructure Resilience and Justice (SIRJ) Lab  and  Water Quality, Outreach, and Wellness (WOW) Lab  CLR Method: Person-to-Person Surveying and Bacterial Sampling Contact:  Taylor Smith-Hams , Advocacy & Outreach Senior Manager

Building on a 2020 John's Hopkins University  SOURCE program  study that found that sewage backups disproportionately impact Black communities in the Cherry Hill and Belair-Edison neighborhoods of Baltimore,  Blue Water Baltimore  (BWB) and its partners initiated a CLR project to evaluate the true cost of the back-ups and conducted direct outreach to provide information and support to help impacted residents.

One goal of this CLR project is to bolster BWB’s and residents’ case that the City of Baltimore must strengthen the  Expedited Reimbursement  and  Sewage Onsite Support Programs , which are designed to help residents experiencing backups with cleanup and recovery activities but have low rates of participation and applicant acceptance.

A group of seven people pose for a photo; they are holding survey materials and wearing safety vests.

BWB and University of Maryland faculty collaborated with community leaders in the Cherry Hill and Belair-Edison neighborhoods to design a community survey and conduct outreach to over 40 local households. Among other things, project participants were asked about their experiences with sewer backups, related impacts to their physical and mental health, and the extent of local government warnings and response. The survey was coupled with bacterial sampling in the basements of willing residents to test for the presence of water quality indicators and pathogens. Participants were provided a $75 stipend, and new participants were identified in the process through snowball sampling.

two people dressed in white lab coats process samples at a lab bench

Collected samples were tested for the presence of water quality indicators and antibiotic-resistant pathogens.

Once the data analysis has been completed and bacterial samples have been processed, BWB, UMD, and community leaders will share the results with individual homeowners, along with resources to mitigate any bacteria found in their homes. The compiled, anonymized data will be shared with the community at large to increase knowledge about the extent of sewage backups in each community. They will also capture video recordings of residents willing to share their personal stories of the impacts of recurring sewer back-ups in their homes, to make the case to local officials of the dire need to provide additional support to impacted residents and prioritize infrastructure investments in the Cherry Hill and Belair-Edison neighborhoods.

West Street Recovery

Location: Northeast Houston Project: Community Evaluation of Flood Impact in Northeast Houston Partners:  Northeast Action Collective  CLR Method: Person-to-Person Surveying and Community Mapping Contacts:  Becky Selle , West Street Recovery;  Doris Brown , Northeast Action Collective

Hurricanes as well as frequent rain events present significant flooding threats to the City of Houston. Flood-prone areas in northeast Houston have experienced the highest proportion of flooded housing units. These high-poverty and predominantly Black and Latinx communities have also received few disaster recovery dollars in comparison to other parts of the city. To address these issues,  West Street Recovery  (WSR) partnered with the Northeast Action Collective (NAC) on a CLR project that used person-to-person surveys and community mapping to identify land parcels prone to repeated flooding; to understand the impacts of flooding on residents’ health, mobility and wellbeing; and to gather community priorities for how the City of Houston can minimize and better prepare for and respond to flooding.

Two people lean onto a table to examine a map

Community members provide feedback on a map of Northeast Houston as a part of WSR's CLR project.

A project team made up of English- and Spanish-speaking residents, WSR staff, and NAC members designed a bilingual survey to distribute at local outreach events located at a grocery store and a park. About 70 people were engaged through these events where they also invited participants to physically mark locations that are frequently flooded and/or where water ponds following rain events on large paper maps. Data collected indicated that a large majority of the participants (80%) experienced flooding in their home in the last 20 years and expect it to be a problem in the future. Participants also reflected that flooding of their home impacts them not only financially, but physically and mentally as well.

Graphs and pie charts representing survey results about the frequency and impacts of flooding

West Street Recovery provided a summary of survey results.

The project team used the information to advocate to local decision-makers—city leaders and County Commissioners—for equitable spending of public dollars to alleviate flooding in northeast Houston and held a press conference to highlight the disproportional harms and funding inequities experienced by neighborhood residents. Though the residents of northeast Houston continue to advocate for local investments and seek long-term solutions, WSR and NAC report that through the CLR process they have developed a more nuanced analysis of the existing inequities in Houston while centering the knowledge of those experiencing flooding in their community.

To learn more about  WSR’s efforts to lift the voices of northeast Houston residents, see  Survivors as Experts .

Un Nuevo Amanecer

Location: Ponce, Puerto Rico Project: Building Socio-Ecological Resilience: Community Inventory of Unused properties and Flood-Prone Coastal Areas in Playa del Ponce Partner:  Centro para la Reconstruccion del Habitat, Inc.  CLR Method: Community Mapping Contact:  David Southgate , Advisor to Un Nuevo Amanecer, Inc.

With a population of about 11,400, the community of Playa de Ponce is a small, low-lying urbanized coastal community on the southern coast of Puerto Rico that is subject to coastal storms, riverine flooding and urban stormwater runoff exacerbated by inadequate municipal infrastructure. Hurricanes and other natural disasters contributed to a significant (19%) decrease in Playa de Ponce’s population from 2010-2020. This has, in turn, led to a housing vacancy of over 30% in the informal settlements that house Playa’s most socially vulnerable residents.

 Un Nuevo Amanecer  partnered with the  Centro para la Reconstruccion del Habitat, Inc.  and local residents to develop an inventory of unused residential and commercial properties and areas prone to flooding. Maps of these areas can be used to identify potential sites for green infrastructure installations and natural flood buffer restoration. These sites can also be transformed to provide other economic, physical, or social resilience benefits for the community of Playa de Ponce.

The project team designed data collection forms and protocols, recruited community volunteers and trained them to conduct walking assessments to identify and document abandoned properties and areas prone to flooding.

three people are turned away from the camera at a fence making observations of the vacant lot in front of them

Volunteers collect data about abandoned lots in their community.

Altogether, 170 properties were inventoried, and the data was used to create a  Geographic Information System  layer. A technical team is using the maps to develop reuse scenarios and illustrations of how today’s abandoned sites can be redeveloped with community input in ways that increase community resilience. The community-identified flood zones will be incorporated into a  Floodplain Management Plan  developed by the US Army Corps of Engineers which will analyze the potential application of structural and non-structural approaches to mitigate flooding in the community. 

Get Started with CLR

Diagram depicting community-led research steps: (1) Establish Project Team, (2) Define Project Purpose, (3) Scope Project, (4) Design Project, (5) Implement Project/Collect Data, (6) Analyze Data/Take Action

Appendix 1 in the Fostering Community-Led Research and Knowledge toolkit walks through these CLR research steps with more details and checklist for each.

The knowledge of community members is essential to solving local problems, and CLR can be an effective way to tap into that knowledge. By incorporating CLR into your climate resilience, green infrastructure, stormwater management, and infrastructure investment assessments and planning you can help ensure more successful and equitable outcomes for the community.

River Network is looking to partner with organizations and communities to design and implement CLR projects - please reach out to  Diana Toledo , Senior Program Director, for more information.

Get started with  Appendix 1: CLR Project Planning and Facilitation Guide  from the Fostering Community-Led Research and Knowledge Toolkit, which walks through each step of the CLR process with details and checklists.

For more information and examples of CLR projects, see  Appendix 3: References and Resources .

Appendix 1 in the Fostering Community-Led Research and Knowledge toolkit walks through these CLR research steps with more details and checklist for each.

Analysis of the data shows the survey respondents' impacts of flooding and preferrred flood reduction/mitigation strategies.

Collected samples were tested for the presence of water quality indicators and antibiotic-resistant pathogens.

Community members provide feedback on a map of Northeast Houston as a part of WSR's CLR project.

West Street Recovery provided a summary of survey results.

Volunteers collect data about abandoned lots in their community.